{"id":1499,"date":"2018-02-27T11:36:00","date_gmt":"2018-02-27T11:36:00","guid":{"rendered":"http:\/\/www.euegeajans.com\/?p=1499"},"modified":"2020-12-30T11:39:54","modified_gmt":"2020-12-30T11:39:54","slug":"egeli-hekimler-hamza-bebege-nefes-oldu","status":"publish","type":"post","link":"https:\/\/www.euegeajans.com\/index.php\/2018\/02\/27\/egeli-hekimler-hamza-bebege-nefes-oldu\/","title":{"rendered":"Egeli hekimler, Hamza Bebe\u011fe nefes oldu"},"content":{"rendered":"

G\u00f6\u011f\u00fcs kafesi darl\u0131\u011f\u0131 (Jeune Sendromu) nedeniyle nefes alamayan Hamza Bebek Ege \u00dcniversitesi\u2019nde ameliyat edilerek nefesine kavu\u015ftu<\/p>\n

*Ege \u00dcniversitesi T\u0131p Fak\u00fcltesi \u00c7ocuk Cerrahisi klini\u011finde Jeune Sendromu ameliyat\u0131 ba\u015far\u0131l\u0131 \u015fekilde yap\u0131l\u0131yor. Egeli hekimlerin bu ba\u015far\u0131s\u0131 \u00fclkemizdeki di\u011fer \u00e7ocuk yo\u011fun bak\u0131m \u00fcnitelerinde yatan Jeune Sendromlu \u00e7ocuk ve ailelere umut oldu.<\/p>\n

Ya\u011fmur Karada\u011f \u2013 Ali \u015eahini<\/p>\n

\"\"\u0130ZM\u0130R(Ege Ajans)-<\/strong>\u00a0G\u00f6\u011f\u00fcs kafesi darl\u0131\u011f\u0131 (Jeune Sendromu) nedeniyle nefes alamayan Hamza Bebek Ege \u00dcniversitesi\u2019nde ameliyat edilerek nefesine kavu\u015ftu.\u00a0<\/strong>Ege \u00dcniversitesi T\u0131p Fak\u00fcltesi \u00c7ocuk Cerrahisi Klini\u011fi\u2019ne 2015 y\u0131l\u0131nda alt\u0131 ayl\u0131kken \u201cJeune Sendromu\u201d tan\u0131s\u0131 ile gelen ve ba\u015far\u0131l\u0131 bir operasyon ge\u00e7iren Hamza Karaca\u2019n\u0131n kontrollerinden biri hastan\u0131n ailesi ile birlikte ger\u00e7ekle\u015ftirildi.\u00a0\u00a0 Geli\u015fimi sa\u011fl\u0131kl\u0131 bir \u015fekilde devam eden Hamza bebe\u011fin kontrol\u00fc Ege \u00dcniversitesi T\u0131p Fak\u00fcltesi \u00c7ocuk Cerrahisi Anabilim Dal\u0131 Ba\u015fkan\u0131 Prof. Dr. Ata Erdener ve Uzm. Dr. Emre Divarc\u0131 taraf\u0131ndan yap\u0131ld\u0131.<\/p>\n

Uz. Dr. Emre Divarc\u0131, \u201c Jeune Sendromu (asfiktik torasik distrofi) g\u00f6\u011f\u00fcs kafesinin ciddi darl\u0131\u011f\u0131 ile giden do\u011fumsal bir hastal\u0131kt\u0131r. G\u00f6\u011f\u00fcs kafesi darl\u0131\u011f\u0131 nedeni ile akci\u011ferler geni\u015fleyememekte ve soluk almakta ciddi s\u0131k\u0131nt\u0131 yaratmaktad\u0131r. Solunum cihaz\u0131nda y\u00fcksek bas\u0131n\u00e7lar gerektirmekte ve yo\u011fun bak\u0131mdan evine g\u00f6nderilememektedir.\u00a0 Hastalar\u0131n y\u00fczde 90\u2019\u0131 ilk 1 ya\u015f i\u00e7inde ciddi solunum yetmezli\u011fi nedeniyle kaybedilmektedir. Bizim hastam\u0131z da bu \u015fik\u00e2yetlerle klini\u011fimize y\u00f6nlendirildi. Daha \u00f6nce tek karde\u015fi yine bu hastal\u0131k nedeniyle \u00fc\u00e7 ayl\u0131kken kaybedilmi\u015fti. \u00a0Hastaya iki seansta her iki taraf\u0131na olmak \u00fczere g\u00f6\u011f\u00fcs kafesini geni\u015fleten cerrahi operasyon (lateral torasik ekspansiyon) uyguland\u0131. Operasyonda g\u00f6\u011f\u00fcs kafesinde darl\u0131\u011fa neden olan kaburgalar\u0131n alt\u0131 tanesi uygun a\u00e7\u0131larda kesilip geni\u015fleme elde edilecek \u015fekilde titanyum plaklar ile tespitlendi. Bu operasyon \u00fclkemizde say\u0131l\u0131 merkezlerde yap\u0131labildi\u011fi i\u00e7in \u00e7o\u011fu hasta bebeklik d\u00f6neminde kaybedilmektedir. Bizim hastam\u0131zda da birer ay arayla yap\u0131lan iki operasyon sonucu solunum bas\u0131n\u00e7lar\u0131 d\u00fc\u015f\u00fcr\u00fclerek \u00f6ncelikle yo\u011fun bak\u0131mdan eve taburculu\u011fu sa\u011flanm\u0131\u015ft\u0131r. Ameliyattan sonra ge\u00e7en 3 y\u0131l i\u00e7inde solunum makinesi deste\u011fi giderek azalm\u0131\u015f sadece geceleri \u00f6nlem ama\u00e7l\u0131 solunum makinesi deste\u011fi gerekli kalm\u0131\u015ft\u0131r. Y\u00fcr\u00fcmeye ve konu\u015fmaya ba\u015flayan hastan\u0131n geli\u015fimi devam etmektedir\u201d dedi.<\/p>\n

\u201cOnun anne demesi bile yeterli\u201d<\/strong><\/p>\n

Jeune sendromu\u2019nun her 70-150 bin canl\u0131 do\u011fumda bir g\u00f6r\u00fcld\u00fc\u011f\u00fcn\u00fc ifade eden Uz. Dr. Emre Divarc\u0131, \u201c\u00dclkemizde her y\u0131l yakla\u015f\u0131k 10- 15 Jeune Sendromlu \u00e7ocuk do\u011fmaktad\u0131r. Ege \u00dcniversitesi T\u0131p Fak\u00fcltesi \u00c7ocuk Cerrahisi Klini\u011fi\u2019nde bu ameliyat\u0131n ba\u015far\u0131 ile yap\u0131lmas\u0131 \u00fclkemizdeki di\u011fer \u00e7ocuk yo\u011fun bak\u0131m \u00fcnitelerinde yatan Jeune sendromlu \u00e7ocuk ve ailelere umut oldu. Bu yapt\u0131\u011f\u0131m\u0131z ameliyat 2016 y\u0131l\u0131 Avrupa \u00c7ocuk Cerrahisi Kongresi\u2019nde \u201cEn \u0130yi \u0130kinci Olgu Sunumu \u00d6d\u00fcl\u00fc\u201d kazanmaya hak kazand\u0131\u201d dedi.<\/p>\n

Jeune Sendromu hastas\u0131 olan Hamza Karaca\u2019n\u0131n annesi Behl\u00fcl Karaca, ameliyat \u00f6ncesinin \u00e7ok zor oldu\u011funu ama ameliyat sonras\u0131nda her \u015feyin daha da kolayla\u015fmaya ba\u015flad\u0131\u011f\u0131n\u0131 s\u00f6yledi.\u00a0 \u00c7ocuklar\u0131n\u0131n y\u00fcr\u00fcmeye ve konu\u015fmaya ba\u015flad\u0131\u011f\u0131n\u0131 ifade eden Behl\u00fcl Karaca, \u201cOnun anne demesi bile yeterli. \u0130n\u015fallah ileride daha da iyi olacak ve iyile\u015fecek\u201d diye konu\u015ftu.<\/p>\n","protected":false},"excerpt":{"rendered":"

G\u00f6\u011f\u00fcs kafesi darl\u0131\u011f\u0131 (Jeune Sendromu) nedeniyle nefes alamayan Hamza Bebek Ege \u00dcniversitesi\u2019nde ameliyat edilerek nefesine…<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11,70,68],"tags":[346,66,12,18,67,46,345,104,22],"class_list":["post-1499","post","type-post","status-publish","format-standard","hentry","category-haber","category-kampus","category-saglik","tag-ata-erdener","tag-ege-ajans","tag-ege-universitesi","tag-ege-university","tag-egeajans","tag-egemm","tag-emre-divarci","tag-kalem-gazetesi","tag-necdet-budak"],"featured_image_urls":{"full":"","thumbnail":"","medium":"","medium_large":"","large":"","1536x1536":"","2048x2048":"","newsphere-slider-full":"","newsphere-featured":"","newsphere-medium":""},"author_info":{"display_name":"Editor","author_link":"https:\/\/www.euegeajans.com\/index.php\/author\/editor\/"},"category_info":"Haber<\/a> Kamp\u00fcs<\/a> Sa\u011fl\u0131k<\/a>","tag_info":"Sa\u011fl\u0131k","comment_count":"0","_links":{"self":[{"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/posts\/1499","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/comments?post=1499"}],"version-history":[{"count":1,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/posts\/1499\/revisions"}],"predecessor-version":[{"id":1500,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/posts\/1499\/revisions\/1500"}],"wp:attachment":[{"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/media?parent=1499"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/categories?post=1499"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/tags?post=1499"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}