Nadir hastal\u0131klar i\u00e7in dernek kuruldu<\/p>\n
\u00a0Egeli multidisipliner ekipten \u00a0\u00a0\u201cUlusal Nadir Hastal\u0131klar Derne\u011fi\u201d<\/b><\/p>\n
T\u00fcrkiye\u2019nin sa\u011fl\u0131k alan\u0131ndaki en k\u00f6kl\u00fc ve sayg\u0131n akademik birimlerinden olan Ege \u00dcniversitesi T\u0131p Fak\u00fcltesinin farkl\u0131 disiplinlerinde g\u00f6rev yapan akademisyenler taraf\u0131ndan Ulusal Nadir Hastal\u0131klar Derne\u011fi (NADHAS) kuruldu.<\/p>\n
Ege \u00dcniversitesi T\u0131p Fak\u00fcltesi \u0130\u00e7 Hastal\u0131klar\u0131 Alerji ve Klinik \u0130mmu\u0308noloji Anabilim Dal\u0131 \u00f6\u011fretim \u00fcyesi Prof. Dr. Nihal Mete G\u00f6kmen\u2019in ba\u015fkanl\u0131\u011f\u0131nda kurulan derne\u011fin y\u00f6netiminde Prof. Dr. Fatma \u00d6m\u00fcr Ardeniz, Do\u00e7. Dr. Asl\u0131 K\u0131lavuz, Prof. Dr. Meral Kay\u0131k\u00e7\u0131o\u011flu ve Dr. \u00d6\u011fr. \u00dcyesi Yusuf Ali Altunc\u0131 yer al\u0131yor.<\/p>\n
Dernek Kurucu Ba\u015fkan\u0131 Prof. Dr. Nihal Mete G\u00f6kmen,\u00a0 \u201cSon y\u0131llarda giderek ilgi ve fark\u0131ndal\u0131\u011f\u0131n artt\u0131\u011f\u0131 nadir hastal\u0131klar, \u00fclkemiz i\u00e7in de \u00e7ok \u00f6nemli bir sa\u011fl\u0131k sorunu olu\u015fturmaktad\u0131r. Tan\u0131m olarak \u00fclkelere g\u00f6re farkl\u0131l\u0131k g\u00f6stermekle birlikte genel olarak 2 binde 1 ya da daha az s\u0131kl\u0131kta g\u00f6r\u00fclen hastal\u0131klar nadir hastal\u0131k olarak kabul edilmektedir. Ad\u0131 nadir olmas\u0131na ra\u011fmen literat\u00fcrde yakla\u015f\u0131k 8 bin nadir hastal\u0131k tan\u0131mlanm\u0131\u015ft\u0131r. D\u00fcnyada yakla\u015f\u0131k 350 milyon ki\u015finin nadir bir hastal\u0131\u011fa sahip oldu\u011fu \u00f6ng\u00f6r\u00fclmektedir. Nadir hastal\u0131klar dendi\u011finde akla ilk \u00e7ocukluk \u00e7a\u011f\u0131 metabolik hastal\u0131klar\u0131 gelmesine ra\u011fmen t\u0131bb\u0131n hemen her bran\u015f\u0131n\u0131 ilgilendiren geni\u015f bir spektrumda hem eri\u015fkinlerde hem de \u00e7ocuklarda nadir hastal\u0131klarla kar\u015f\u0131la\u015f\u0131lmaktad\u0131r. \u00c7ocuk eri\u015fkin oran\u0131 kabaca y\u00fczde 50\u2019dir. Bu hastal\u0131klar\u0131n y\u00fczde 70-80\u2019i genetiktir. Do\u011fru tan\u0131 alamayan ve etkisiz tedavileri kullanan hastalar\u0131n hayat kalitesi anlaml\u0131 oranda azalmakta, hastal\u0131\u011f\u0131n do\u011fal seyrine ba\u011fl\u0131 sakatl\u0131klar geli\u015febilmekte ve hatta \u00f6l\u00fcmler olabilmektedir. Nadir hastal\u0131klar\u0131 olan hastalar, yayg\u0131n hastal\u0131klar\u0131 olan hastalar kadar g\u00fcvenilir, kaliteli ve etkin tedavileri hak etmektedirler\u201d dedi.<\/p>\n
\u201cDerne\u011fin logosu d\u00f6rt yaprakl\u0131 yonca\u201d<\/b><\/p>\n
Prof. Dr. Nihal Mete G\u00f6kmen,\u00a0 \u201cDerne\u011fimiz nadir hastal\u0131klar\u0131n semptomlar\u0131, g\u00f6r\u00fclme s\u0131kl\u0131klar\u0131 ve tedavileri konular\u0131nda ba\u015fl\u0131ca i\u00e7 hastal\u0131klar\u0131, \u00e7ocuk hastal\u0131klar\u0131, kardiyoloji, gastroenteroloji, romatoloji, acil t\u0131p ve anestezi hekimlerinin bilgi d\u00fczeylerini art\u0131rmak amac\u0131yla kurulmu\u015ftur. Bu sayede tan\u0131 alan hastalar\u0131n tan\u0131 alma s\u00fcrelerini k\u0131saltmak hastal\u0131\u011fa ba\u011fl\u0131 geri d\u00f6n\u00fc\u015f\u00fc\u0308 olmayan sakatl\u0131klar\u0131n geli\u015fimini engellemek ve \u00f6l\u00fcmleri \u00f6nlemek hedeflenmektedir. \u00a0Dahili bilimlerde genel olarak s\u0131k g\u00f6r\u00fclen kalp hastal\u0131klar\u0131, endokrin hastal\u0131klar, enfeksiyonlar, kanserler gibi hastal\u0131klara yer verilmektedir. Hangi semptom ve laboratuvar bulgular\u0131 ile hangi nadir hastal\u0131klar\u0131 d\u00fc\u015f\u00fcnmeliyiz konusunda verilecek e\u011fitimler, toplant\u0131lar, kongreler, g\u00f6rsel ve sosyal medya \u00e7al\u0131\u015fmalar\u0131 hekimlerimize tan\u0131 koymada k\u0131lavuz olacakt\u0131r. Her zaman dayan\u0131\u015fma i\u00e7erisinde oldu\u011fumuz Nadir Hastal\u0131klar Hasta Dernekleri ile birlikte verimli, keyifli ve e\u011fitici yollar kat edece\u011fimize inan\u0131yoruz. \u00a0Logomuz d\u00f6rt yaprakl\u0131 yonca insanl\u0131\u011f\u0131n t\u00fcm tarihi boyunca \u015fans\u0131n ve t\u0131ls\u0131m\u0131n simgesi olmu\u015ftur. Yapraklar\u0131ndan ilki umudu, ikincisi inanc\u0131, \u00fc\u00e7\u00fcnc\u00fcs\u00fc sevgiyi ve d\u00f6rd\u00fcnc\u00fcs\u00fc b\u00fcy\u00fck \u015fans\u0131 simgelemektedir.\u00a0Nadir Hastal\u0131klar G\u00fcn\u00fc Sempozyumu ve Pediatriden Eri\u015fkinli\u011fe De\u011fi\u015fken Y\u00fczleri ile Primer \u0130mm\u00fcn Yetmezlik Sempozyumu\u2019nu bu senenin ilk \u00fc\u00e7 ay\u0131nda ger\u00e7ekle\u015ftiren derne\u011fimiz 11-13 May\u0131s 2023 tarihlerinde de 2. Ege Herediter Anjiyo\u00f6dem Sempozyumunu d\u00fczenleyerek alan\u0131ndaki yetkin isimleri bir araya getirecek\u201d diye konu\u015ftu.<\/p>\n
Prof. Dr. Nihal Mete G\u00f6kmen\u00a0<\/b><\/p>\n
Herediter anjiyo\u00f6dem, sistemik mastositozis konular\u0131nda \u00fclkemizin yetkin bilim insanlar\u0131ndan olan Ege \u00dcniversitesi T\u0131p Fak\u00fcltesi \u0130\u00e7 Hastal\u0131klar\u0131 Alerji ve Klinik \u0130mmu\u0308noloji Anabilim Dal\u0131 \u00f6\u011fretim \u00fcyesi Prof. Dr. Nihal Mete G\u00f6kmen,\u00a0 T\u00fcrkiye\u2019de hekimler aras\u0131nda herediter anjiyo\u00f6dem fark\u0131ndal\u0131\u011f\u0131n\u0131 art\u0131rmak amac\u0131yla Herediter Anjiyo\u00f6dem Gezici Okulu Program\u0131\u2019n\u0131 ba\u015flatan isim olarak biliniyor. Tu\u0308rkiye Herediter Anjiyo\u00f6dem Hasta Derne\u011fi\u2019nin de kurulmas\u0131na \u00f6ncu\u0308lu\u0308k eden Prof. Dr. Nihal Mete G\u00f6kmen 200\u2019den fazla herediter anjiyo\u00f6dem hastas\u0131n\u0131n takibini ger\u00e7ekle\u015ftirdi. Kendisinin \u201cHerediter Anjiyo\u00f6dem\u2019\u2019 isimli uluslararas\u0131 bir kitab\u0131 da bulunuyor.<\/p>\n","protected":false},"excerpt":{"rendered":"
Nadir hastal\u0131klar i\u00e7in dernek kuruldu \u00a0Egeli multidisipliner ekipten \u00a0\u00a0\u201cUlusal Nadir Hastal\u0131klar Derne\u011fi\u201d T\u00fcrkiye\u2019nin sa\u011fl\u0131k alan\u0131ndaki…<\/p>\n","protected":false},"author":2,"featured_media":14798,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,70,68],"tags":[],"class_list":["post-14797","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-gncl","category-kampus","category-saglik"],"featured_image_urls":{"full":["https:\/\/www.euegeajans.com\/wp-content\/uploads\/2023\/05\/Egeli-multidisipliner-ekiptenUlusal-Nadir-Hastaliklar-Dernegi.jpg",2048,1536,false],"thumbnail":["https:\/\/www.euegeajans.com\/wp-content\/uploads\/2023\/05\/Egeli-multidisipliner-ekiptenUlusal-Nadir-Hastaliklar-Dernegi-150x150.jpg",150,150,true],"medium":["https:\/\/www.euegeajans.com\/wp-content\/uploads\/2023\/05\/Egeli-multidisipliner-ekiptenUlusal-Nadir-Hastaliklar-Dernegi-300x225.jpg",300,225,true],"medium_large":["https:\/\/www.euegeajans.com\/wp-content\/uploads\/2023\/05\/Egeli-multidisipliner-ekiptenUlusal-Nadir-Hastaliklar-Dernegi-768x576.jpg",640,480,true],"large":["https:\/\/www.euegeajans.com\/wp-content\/uploads\/2023\/05\/Egeli-multidisipliner-ekiptenUlusal-Nadir-Hastaliklar-Dernegi-1024x768.jpg",640,480,true],"1536x1536":["https:\/\/www.euegeajans.com\/wp-content\/uploads\/2023\/05\/Egeli-multidisipliner-ekiptenUlusal-Nadir-Hastaliklar-Dernegi-1536x1152.jpg",1536,1152,true],"2048x2048":["https:\/\/www.euegeajans.com\/wp-content\/uploads\/2023\/05\/Egeli-multidisipliner-ekiptenUlusal-Nadir-Hastaliklar-Dernegi.jpg",2048,1536,false],"newsphere-slider-full":["https:\/\/www.euegeajans.com\/wp-content\/uploads\/2023\/05\/Egeli-multidisipliner-ekiptenUlusal-Nadir-Hastaliklar-Dernegi-1280x720.jpg",1280,720,true],"newsphere-featured":["https:\/\/www.euegeajans.com\/wp-content\/uploads\/2023\/05\/Egeli-multidisipliner-ekiptenUlusal-Nadir-Hastaliklar-Dernegi-1024x768.jpg",1024,768,true],"newsphere-medium":["https:\/\/www.euegeajans.com\/wp-content\/uploads\/2023\/05\/Egeli-multidisipliner-ekiptenUlusal-Nadir-Hastaliklar-Dernegi-720x380.jpg",720,380,true]},"author_info":{"display_name":"Editor","author_link":"https:\/\/www.euegeajans.com\/index.php\/author\/editor\/"},"category_info":"G\u00fcncel<\/a> Kamp\u00fcs<\/a> Sa\u011fl\u0131k<\/a>","tag_info":"Sa\u011fl\u0131k","comment_count":"0","_links":{"self":[{"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/posts\/14797","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/comments?post=14797"}],"version-history":[{"count":1,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/posts\/14797\/revisions"}],"predecessor-version":[{"id":14799,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/posts\/14797\/revisions\/14799"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/media\/14798"}],"wp:attachment":[{"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/media?parent=14797"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/categories?post=14797"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.euegeajans.com\/index.php\/wp-json\/wp\/v2\/tags?post=14797"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}